The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, September 21, 2015

Long Time

WOW, I can't believe a whole summer has come and gone and I never posted on this blog.  I actually lost a lot of information from my phone regarding doctors appointments and notes so I feel totally lost in what to post.  I will have to just summarize and post the things I can remember.  I will start working on a post that will cover our summer, etc. but for now I'd like to invite anyone who hasn't yet had the opportunity to become a member of the bone marrow registry, to become one now.

This coming Saturday my wonderful nephew Garrett Cutler is holding a Marrow Donor registry drive for his Eagle scout project.  If you have thought about joining at all...ever, if you've had that nudge, now is a good time to do something about it.  Even if you can't make it Saturday or do not live in the area, you can still join through Garrett's efforts via internet.  The following flyer has all the details.

I am looking forward to being there on Saturday to support Garrett and answer any questions people might have regarding the whole process....I hope to see some of you there.

Lisy

p.s. Also if you have already joined the registry, Garrett is also holding a bake sale during the drive to raise extra money to donate to 'Be The Match'.  And I'm not going to lie but his Mamma is the best baker lady in town, so it will be well worth it.

p.p.s. The location of the marrow drive/bake sale is in LEHI--the address is on the flyer.


Okay here is a working link to Garrett's marrow donor registry drive.
http://www.bethematchfoundation.org/site/TR?team_id=46443&fr_id=1960&pg=team#.VgLbOI9VhHx



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