Her hemoglobin went from a 7.1 to a 7.9. This is great--she may not need a blood transfusion.
If she has
With graft vs. host disease in the gut, the body
I have wondered if she is following the same pattern we saw in Natalie when she was suspected of , which in turn was unofficially determined as intolerance to gluten.
Regardless the biopsy will be the only true indicator and will be obvious between the two . If she has she will be placed on a higher dose of her anti rejection medication and possibly some added medications.
The doctors feel that if she has it could be a result of a rapid taper as her body's was falling and the only choice was to speed up her taper.
Next week her current chimerism test should be reported, which will be helpful.
Many things come and many things go...we are feeling better about Natalie's new gluten free diet and realizing that it is a blessing in disguise as we are eating healthier and becoming more aware of what is really in the food we eat. Each new challenge that comes and sometimes goes has made us more knowledgeable and prepared for the next obstacle around the corner.
The idea of praying for your trials to go away is silly, possibly immature...rather we are praying for extra strength to manage the trials that come, including prayers for a small bit of time between them...even be it a day...just enough time so we can find our feet on the ground again.
Tyler and I made an awesome schedule for our family during this time of quarantine. It included exercise, schooling for the children, discovery time, games, etc. Sadly, we admit that our schedule has many loop holes and disclaimers. We feel it a privilege when followed as it indicates that life has some rhythm. We decided that flexibility is our motto...and sanity is a perk. ;)
Part two off this post will come tomorrow...I need to go to bed.
Thanks again to all for your prayers.