The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, December 25, 2012

Merry Christmas!!

Merry Christmas to All!!

We had a wonderful Christmas.  Everything about it was lovely.

Yes, we were all together.  The night before Christmas Eve we got nervous that Alice was getting sick, she vomited a lot and her tummy hurt and she seemed warm (temp.)  We watched her closely and she improved,  we were thankful.

Natalie wanted to be sneaky and set up a video camera so she could catch Santa.  The video worked, however, Santa had put his big red bag right in front of the camera...not knowing ;)  All she saw on the video was red and she could hear bells jingling and Santa saying Ho Ho Ho as he left; even then, she was thrilled to have something magical on the record.

When morning came (at 4:00 a.m.) the kids could not have been happier.  Tyler and I felt like we were in a story book.  Everything was perfect and wonderful.

We have so much in which to be thankful!

Many of our blessings now and over the past year, etc. have come by way of many forms.  It is an amazing thing to witness the inside of another's heart.  It is also amazing how much happiness and gratitude one heart can hold without bursting.

Thank You,


1 comment:

  1. A belated Merry Christmas to you and your family! I'm so happy that you all could be together for the day and that it ended up being such a great day. Natalie is smart! It's great that she got some film footage to prove that there is a Santa. :-)