The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, June 13, 2013

Lost Wallet and a Reminder of Hope


This week has been hard and discouraging in every way.  The depressing news of Alice this past Monday seems to be taking great precedence over our emotions...which it should, naturally.  The challenge is directing our thoughts and emotions in a way that allows us to keep a clear mind and focus on things at hand separately rather than a mesh of confusion.  It's hard to function in simple ways when the mind feels so complex and bogged down.  Productivity is an art of focus and direction, a product of deadlines...which we have none in moments like this.  It's always this way when we encounter discouraging news...then we find our footing and keep moving forward, once we realize which way is forward. ;)

The confusion of Alice's near future, the worry of what could happen, the exhaustion of fighting hard, the endless hope for miracles, the gratitude of how far we have come, and wonder of where it will take us consistently resides in our minds.  The whole process is overwhelmingly captivating.

The cherry on top was Tyler loosing his wallet.  It's just a wallet...right?  No big deal, it will show up, we can cancel a few things, no biggie.  BUT when your mind is already so saddened and discouraged a lost wallet becomes more than what it really is.  It translates into being short and grumpy.  Tyler wasn't the only grumpy person at our house. We all were.

After a whole day searching for his wallet, Tyler decided to cancel his cards and went to the DMV for a replacement drivers licence.  He was feeling a little better, however, shortly after he cancelled everything it was found.  If you wish to know, watch the video! It made me laugh, and we needed a good laugh around here.

(The Video is taking forever to upload) when it's ready I will post it.

Lisy

p.s. I had a little reminder of Hope this week.  Just when I was feeling most discouraged and sad I received an email from a mission friend, in which it has been many many years since we last touched base, this friend said everything Tyler and I needed to hear and truly was inspired to write.  It reminded me that Heavenly Father is watchful.  How could someone after nearly 10 years of no contact out of the blue, not knowing our circumstances until recently, write and know the things of our heart, specifically.  I am so thankful for this person following the prompting they received.  I found more strength and once again know that everything will be okay...No Matter What!

2 comments:

  1. psalm 31:24 be strong & take heart, all you who hope in the Lord.
    psalm 33:20 we wait in hope for the Lord, for He is our help & our shield.

    i read these & thought of your dear family. joining yall in prayer over dear sweet alice.

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  2. Tyler, it was so nice meeting you at the park today. Thank you for sharing your story and your faith with my family. My little girls have been telling everyone today about their new friend Alice. Seeing her on the video on your blog just breaks my heart. My prayers tonight will definitely be for her and for your family.

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