No matter how many times we do it, it's always strange to me when we finish up late at clinic. We arrive in the morning when things are busy and by the time we come out of our room the halls are quiet, lights are off and most everyone has gone home for the day. Its at that time that I often reflect on how many times and how long we've been coming here. When I exit the clinic door I will often look to my right and to the end of the hall. My eyes will typically meet the glow of afternoon sunlight through the conference room windows and couches that are often inhabited by silhouettes resting or talking on the phone. I always assume they are family or friends, catching up on life before they lovingly and dutifully walk back into what I cannot see from my view around the corner; which are two automatic doors leading the way to patient rooms. I then reflect on how many times I have and will be one of those silhouettes in the near future. I also wonder if there have been many before who have watched me catch up on life and walk back in for what is likely to be a long night of doing your best to make your child as comfortable as possible.
|She feel asleep like this.|
|Brennan and Natalie|
Sunday we had dinner with the Clark family. They are the homeowners of the Parade of Homes #16 in Bluffdale. This room was designed Hawaiian style...in recognition of Natalie's wish.
|Brennan gave this awesome Ukulele to Natalie...she loves it.|
|A tree in the playroom at PCMC. A whole bunch of wishes by children.|
|I especially loved this one.|
|Making ice cream in the playroom....passing time until Alice's appointment was over.|
|The ice cream actually tasted good.|
|Made a trip to the Beehive house for a tour.|
|We had enough time to do something fun while waiting for Alice and Tyler. No siblings are allowed in clinic..Natalie and Blair would not have wanted to be there anyway.|
|Had some lunch at the Lion House Pantry.|
|Wishful thinking. She had a wonderful gluten free pork and potato dish.|
|Next day, Tuesday. Matthew and Jerome came to give Natalie some moral support.|