The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, November 4, 2013

Day 18

ANC 3800, Hemoglobin 9.6, Platelets 36

X-ray--Her lungs sound more crackly today, could be due to inflammation caused by white cells rushing to the spots of infection/bacteria that has been in her lungs, or possible increased infection.  Hopefully it is inflammation due to healing.  *x-ray results came back...looks good, they think the crackling is from the white cells cleaning up.

Today Alice's morphine pump was tapered another notch.  She might even be off morphine entirely by the end of the week.

Alice sleeps most of the day, her body is healing and sleep is just what it needs to heal.

Grace came to visit.

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