We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.
Monday, January 27, 2014
53 days in the hospital
Just a quick update. The doctors came in this morning with smiles on their faces and delivered the news that Alice could go home today! It will be a ton of work maintaining her medicine schedule, but even then we are so excited to get her home.