The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, March 17, 2014

Back again

Last night was a tough night. Alice could not stop coughing and throwing up. It was around 3am that we took her temperature and found that she was running a fever. By 5am we could see that it wasn't coming down and made the call. We arrived at Primary's close to 7am and checked her in. Her temp read 38.5 C upon arrival. I was exhausted by the time vitals were finished and we could rest a little. Her blood cultures came back negative so far, but the nasal panel was positive for Adenovirus in her nasal cavities. We will be here for at least the next couple days. This is hard to watch her go through, however she is where she enjoys being. I am grateful for that.

This video may be a little graphic; however after watching Alice it made me realize more, that what she does is nothing new to her. This is all she knows with regards to her health. Watch how she becomes sick, muscles through it and doesn't miss a beat when moving on after she is done.

Tyler

Posted by at 12:05 AM

2 comments:

  1. AnonymousMarch 20, 2014 at 9:19 PM

    She's so grown up about it, but it breaks my heart when she says, "I hate this." Sweet girl, we all hate that you have to go through that too.

    ReplyDelete
  2. Stef plus 3March 23, 2014 at 8:32 PM

    Poor baby :( I love her sweet little voice

    ReplyDelete

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