The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, September 25, 2014


Okay, so many months ago Natalie asked if she could have a piano.  I told her maybe someday.  A little while later I was in a copy shop and saw a flyer to win a Hailun Piano, so I thought, what the heck, let's try it.  Well then I forgot about it, but the flyer continued to show up around the house...usually in Natalie's hands asking if she could participate in the contest.  So, FINALLY I took her into the piano store (Brigham Larson Pianos) to join the contest.  

They ask about your story as to why you play the piano, and why you love to play.  Natalie's reason is very unique.
 The story/video with the most Youtube views wins the piano.  Considering that we just joined the contest in late September, our chances are small.  The contest has been going since April and will run through the end of the year. Regardless it is a good experience for Natalie.                    

Share the video if you can, and help Natalie get more views. Thanks!
(There is no limit to how many times one can view the video)

Natalie was nervous to talk in front of the camera, therefore, she wanted to read something rather just tell her story. I helped her write her story, but it looks like I have set her up to this...ugg, anyway she really wants a to do this,,,so here goes!

1 comment:

  1. Natalie. Great Job. I will share your video. Good Luck!!