The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, July 17, 2012

Make A Wish

Fun, Fun, FUN.  Today was a lot of fun.  The kids must have asked 200 times when it would be 5:00 so we could head to the wish house in Murry.  Wow...what a great experience it was.  The building is beautiful and the people are wonderful.  An inspiring place.

Our sweet wish grantor's Ann Marie and Corrine gathered us around and played a game to help the girls brainstorm about what they want to wish for.  It was as much fun for everyone as it was for Natalie and Alice.  By the end of the game the girls decided on their wishes...plus a back-up wish.  They placed their wishes in a metal capsule and unlocked the door to the wishing well.  Behind the locked door was a beautiful room with glass flooring (which had changing lights), a water fall and some enchanted music to go along with the changing lights.  The girls loved it.

In a few weeks we will find out if their wishes are granted.  Here is a list of wishes that Natalie and Alice have been considering...we will tell you the wishes they chose and what was granted soon.

Natalie's
A family size bicycle
A trip to New York to stay in the Plaza Hotel like on Home Alone 2
A trip to Hawaii to see sea turtles, whales, swing on vines, drink from coconuts and see grass huts.
To be an Elephant trainer and have Elephant things
To wish that her siblings could have iPads so they will leave her iPad alone
To live in a tree house with jungle animals all around

Alice's
To be Rapunzel
To meet Rapunzel
To be a Princess

Tyler and I love how the Make A Wish Foundation began so we added the story's link to this post.  It's true...the Make A Wish Foundation is special.  Our family has yet to experience the wishes, but already the healing has begun.  Having something to look forward to is already healing.  Over the past several months Natalie has enjoyed talking about the day she gets to make a wish.  During the times when she was most discouraged she would ask if we could talk about her wish.  Merely talking about it somehow made the hard times seem easier.

http://www.wish.org/about/the_first_wish

Lisy

I don't have many pictures now, but will add more later. 


                                                   The welcome banner in the door way

                                     Natalie placing her wish and Alice's wish into the capsule


                                              The pictures below are inside the wishing tower
 







Posted by at 11:58 PM

3 comments:

  1. MillieJuly 18, 2012 at 9:40 AM

    That is awesome!! I can't wait to see their wishes come true!

    ReplyDelete
  2. KelleyJuly 18, 2012 at 9:25 PM

    Will & I just read the last few posts & we want you to know that we truly love & admire you. Thank you for sharing the girls' wishes. They are going to have the greatest experiences! We are looking forward to wish updates. Please give everyone hugs from us. We hope you can feel our love & prayers coming your way!

    ReplyDelete
  3. HilaryJuly 21, 2012 at 2:00 AM

    We will cross our fingers for Hawaii!! You have a place to stay anytime!! We think of you guys often.

    ReplyDelete

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