The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Wednesday, July 31, 2013

One More Thing

I forgot to mention that next week Alice will  be admitted to the hospital for approx. a weeks time to complete some more testing.  One test will be a biopsy of her gut and another a biopsy of her marrow, possibly.  Both are risky in her condition, therefore she will be closely monitored and will remain inpatient during that time.

Lisy
Always time for a game of Hide N Seek---never gets old.
Posted by at 9:16 AM

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)