The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, August 25, 2013

Blair's Space Balloon


Hi everyone...this was a special project for our family to celebrate Blair's heroism, and to promote bone marrow donor awareness. The footage of space turned out to be spectacular, and will be shown on KSL Channel 5 at 10pm tonight.  Also we want to especially thank Alice's donor Michelle.  If you get a chance watch, share and sign up to be a hero at bethematch.org

Posted by at 5:31 PM

4 comments:

  1. UnknownAugust 25, 2013 at 8:07 PM

    This is so incredibly AWESOME!!! Watching what greatness has come from this journey makes my heart happy. Still in every prayer, we love you!

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  2. TamaraAugust 25, 2013 at 8:16 PM

    Loved it!!! Awesome footage, and I love the way it was all put together. Thanks for sharing! :) :) we love you guys!!!!!

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  3. Chera ReeseAugust 28, 2013 at 8:07 PM

    Cried during the entire newscast and started again watching this. Go Blair!!! Such a strong and loving boy. Very well done. So proud of all the fishes!

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  4. AnnaSeptember 8, 2013 at 3:29 PM

    I can't believe that all this time I didn't know you had a blog! I'm so happy to have found it. You are such an amazing family, and I want you to know that I've signed up to be a bone marrow donor now, all because of your hero family! You're all so amazing!

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