The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, November 1, 2013

1100--Engraftment! Day 15

Emily our nurse came in this morning to give more good news. I was too anxious to wait and write tonight. Alice's ANC rocketed to 1100! A healthy jump from 400. No doubt the Neupogen is showing its presence in that number, nonetheless it makes her unlikely to fall below 500 tomorrow. So, today very well will be her engraftment day. If so she will be six days ahead of the average, which means the sooner her mouth will heal and the sooner she will be able to go home. I know we have been in this same position before where she shows so much promise and then comes a let down, so it would seem that I should be more cautious to show my excitement. But when you see your child go through so much....well, its just nice to see her recovery is for the time being, ahead of the curve.

Platelets 29, Hemoglobin 10.1

Tyler


Posted by at 9:08 AM

4 comments:

  1. AnnaNovember 1, 2013 at 10:56 AM

    I'm so happy to hear all this great news! What a trooper.

    ReplyDelete
  2. MindyNovember 1, 2013 at 11:08 AM

    Such Great News!

    ReplyDelete
  3. TamaraNovember 2, 2013 at 3:03 PM

    wow, that is amazing!! We're cheering for you all. Love you guys!

    ReplyDelete
  4. HeatherNovember 2, 2013 at 10:08 PM

    Hi Alice and family - we're the Hess family that met you at the Mitchell Hollow Park this past summer. We are so happy for your good news! We love seeing you on your blog and we are praying and fasting for you. We're wondering what we can do to help. Is there a fund set up we can donate to? Or do you need something else? Sorry to ask you on the blog like this, but I don't know how else to contact you. Thank you. spencerandheather@hotmail.com

    ReplyDelete

Subscribe to: Post Comments (Atom)