The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, November 12, 2011

Email From Lisy

November 12, 2011

Hello again,
On the 9th we had another bone marrow consult. The plan is to begin the process with Natalie as soon as possible, meaning about the first or second week of December. Unfortunately she will be spending Christmas in the hospital. Before hand she will need to clear many tests and have some dental work done, etc. They have to be in top health going into this process. Little Blair will be a real hero…he has stated that his blood will be Natalie’s medicine. He will be very sore after donating his marrow. Natalie will have her last day of school this next week and will not be able to return for a year. I thought maybe on occasion she could Skype with her classmates; her teacher thought that was a wonderful idea. Please if any of you would like to Skype (the cousins, etc.) it will be much appreciated. She will be admitted the first part of December and will hopefully be able to return home by the end of January. Natalie’s baptism date was scheduled for Dec. 3rd. The doctors advised us to move up the date. They felt it best to have that done a couple weeks before the whole process begins. For anyone who can make it, her new baptism date will on the 26th of November. I am trying to get the Stake to allow us to have the font in the afternoon. I will try and email an official invite. We will just have the meeting at the church with no gathering afterward. Thanks again and always to our amazing family and friends. We love you!

Lisy and Tyler

No comments:

Post a Comment