We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.
Thursday, April 5, 2012
Hospital Time
Alice has not had any fevers today. She had a reaction to an antibiotic they gave her, nothing too serious, it caused her to vomit and feel sick. Once the medication was stopped she felt better. Her tummy still hurts, but improving. Many of the tests they have taken for different bacterias and viruses have come back negative, including c-diff. She needed oxygen last night, which surprised us. The oxygen level was minimal and we think she needed it only because of the fever she had.
This video is when Alice first arrived. She is getting settled in and ready for the stay.
Alice and Mom having fun in the hospital watching movies and playing.
Alice loves to try out new toys when she comes to stay.
Keeping us entertained.
Tomorrow will bring more information, hopefully we will be able to go home shortly.
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