The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, July 31, 2012

Finally, some food.

This morning was met with good news from the doctors. Alice will be placed back on the Progression 1 diet. If she can hold her food well enough it will be a good sign that she is on the mend. I recognized this morning how hungry she has been these past couple weeks. I examined her mouth as she slept and I noticed that she has chewed the top layer of her lips to the extent that the rawness is starting to show. My heart sunk. I'm so glad she is able to have some food today.


Tyler

This is a short clip of her first meal in two weeks.





Posted by at 10:26 AM

3 comments:

  1. Katie In NJJuly 31, 2012 at 1:36 PM

    I just can't get over how beautiful Alice is! Even being without food for 2 weeks, today she is smiling! I pray the food goes through her the way it should so she can keep eating. You have such treasures in all of your children, Tyler and Lisy! Just another testament to what good parents you are!

    ReplyDelete
  2. KelleyJuly 31, 2012 at 4:20 PM

    Horray for Alice (and all of you!!)!!!!! We hope her body continues to heal quickly & properly. Love to you all.

    ReplyDelete
  3. Lisa JackAugust 1, 2012 at 7:22 AM

    Praise the Lord!!! Now pass the food. ;-)

    ReplyDelete

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