We celebrated Evie's 1st Birthday. It was fun to be together...it was LOUD. Not exactly your fun playful party kind of noise, it was more that Evie has been experiencing with her vocal cords. Wow, it's amazing how one so small can be so loud. Alice does not like loud noises so when Evie hollers and screams it makes Alice get louder to try and stop her. Finally I started to whisper to the kids and suddenly everything became quieter and calm. They had to be so quiet to hear me...I love that trick.
Tyler and I feel like we stepped back in time with the many added medications Alice is on. We have to remind ourselves that we need to be friends with the clock again in order to find efficiency with her med routine.
One of my favorite things is when I wake to one of my children standing beside our bed or even better when they climb inside. Since Alice has been home she has come to the bedside each morning making little noises and giggling. When I look over at her she is holding my eye glasses and hands them to me. Then she says, "I hungry Mom!" This phrase is something we hear almost every 10 minutes...even after she eats. Sometimes she rubs her tummy and says, "My tummy is hungry." Her little belly is very extended and often hurts. We are helping her understand that once she has food in her tummy she needs to let it rest before she eats more. She will physically feel full after eating but mentally she still craves food. This hard for her to understand. This is one of several side effects to the steroids.
And just for the record, we will someday regularly wake up before our children...that's when things get done. However, Evie is an early bird, she is up no later than 6:00/6:30 but loves to come into our bed and play while Tyler and I pretend like we are still sleeping. I think pretending makes us think we are getting more sleep. Tyler and I have to remind ourselves to be patient and that someday a full night's rest will come. With that said, I think the majority of people regardless of circumstances find sleep to be a delicate thing and restful sleep often hard to come by.
|The cake turned out alright it was gluten free, dairy free, yet tasty. It doesn't look very good, decorating cakes is definitely not one of my talents.|