The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, November 15, 2012

Biopsy For Alice

Today Alice had a bone marrow biopsy.  The procedure was done in the RTU (rapid treatment unit).  We love the RTU.  It's much faster and simpler than same day surgery.  Anyone who has been to Primary Children's same day surgery knows the fairly lengthy process involved in a procedure at same day.

The nurse practitioner took a small piece of the bone, inner bone fluid and some marrow to be tested.  Her little back is a bit sore, but nothing compared to the past two biopsy's that she has had.  Everything went well and smooth...until it was time to wake from the anesthesia.  She didn't want to wake up.  Being the faster unit...the patients are in and out.  She wanted to sleep longer and be left alone.  I don't blame her.  I felt bad about that.  She did manage to get an awesome nap during the one hour ride home.  When I pulled up to the house I was equally as exhausted.  I just parked the car in the driveway...turned it off and the two of us had the best peace and quit ever.  I will say that some of my favorite naps are in the car. 

The kind of naps when you don't have the energy to unload the car and face what's awaiting behind the door the moment you enter. ;)

We made it home long before we would have--had it been our routine clinic appointment.  It was nice.

I'm trying to keep my phone on me all day in the event that the doctor calls with some results.  No news so far.

While fasting before the procedure Alice told me that her tummy was talking to her and said it needs a ham sandwich.


We played bubbles, hide n seek, and Cinderella to help pass time while Alice's tummy was hungry.

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