The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, November 9, 2012

Happy Birthday Natalie--Evie Has Parvo Virus

Natalie turned 9 today on the 9th.  She was skipping around all day anxious for the evening to come and celebrate with pumpkin pie and family.

It was a great day.  I asked her what she wanted for dinner, she said "Green Soup"...asparagus soup.  I figured she would say that.  It's one of her favorites.  Instead of cake she requested pumpkin pie.  I can't remember the last time we didn't have a pumpkin pie for her birthday cake.

Our friend Jessie came for the day and played with the kids and helped me prepare a nice birthday meal.  

Yesterday we noticed a rash on Evie's legs, arm and cheek.  I wanted to have it examined so I took her to the doctor.  The doctor is certain she has Fifth's Disease...Parvo Virus.  I have only terrible memories of this virus.  This same virus put Natalie on her death bed several years ago.  It dropped her hemoglobin to 2.8.  She was in the PICU waiting for blood.  Two people worked non-stop for eight hours to match her blood...still it was released as a non-match but as close as it could be with the urgency of her need.

Evie has been feeling terrible, yet she manages.  It seems strange to have such a virus and just go along as normal.  We are holding little Evie more and giving her plenty of fluid.  She doesn't want to eat much.  It's a wonderful thing that her immune system is managing.  Something we will never take for granite.  We are not sure what to think regarding Natalie and Alice.  We hope this bug doesn't amount to much.    

Cousin Kennidee made Natalie a darling elephant picture.
The excitement of glass.
Showing Alice the snow through the window.
The dinner Natalie requested. 

Happy Birthday to Natalie!
What's new on Natalie...clip-ons!  She asked for earrings that don't have a needle.
A giant Jerome!
First snowfall of the year on Natalie's birthday.  She, Matthew and Blair had a great time.  They built a snowman.  Before I could take a picture of it...they knocked it down.


  1. Happy Birthday Natalie!!! She is so beautiful--I love her smile with the birthday cake. She's looking more grown up and SO cute!

    Poor little Evie. :( Hoping she gets better soon! (and you all keep from getting it.)

    missing you all!!

    Love Tami and Jake and baby Tami (aka Ava)

  2. Happy Birthday Natalie! We're so glad we know such brave and wonderful people.

  3. Happy Birthday to Natalie! I love that she asked for earrings without a needle. She is very wise.

    Sending good thoughts that Evie will get through her virus easily, and everyone else will stay healthy.