Alice and I took a nap together today...it was long!!! It was awesome! The sun was shining in the window making it warm and cozy and we slept for almost 4 hours during the middle of the day...really who gets to do that. It's not so bad here at the hospital ;)
When we Skyped home Natalie and Alice played Hide n' Seek. Natalie would hide and Tyler was walking around the house with the camera as if Alice were there looking for her. It was fun for all of us. While on Skype Matthew and Natalie showed me the wonderful art work they created and Blair danced like an Egyptian, trying to entertain Alice.
A few days ago Alice's Cyclosporine (anti-rejection med) level was 17 (extremely low) it should be 250. The doctors were very concerned; we concluded that it was because her body couldn't absorb the medication, including nutrition because her GI system was so poor. Her body needs to heal so we can sort out all the other things going on with her. We are just putting out one fire at a time...the hottest ones first.
Alice started Valacyclovir today to help with her mouth sores...maybe tomorrow we will see some improvement.
At home, Natalie is recovering nicely from the Shingles. She continues to complain less each day about the itching and pain.
|The long awaited apple juice bottle|
|Making a bead necklace|
|Very nice necklace|
|This is what we look like after a 4 hour nap. She did wake smiling.|
|A good nap calls for a good hairstyle in front of the mirror|
|Grandpa and Grandmother Fish saying hello, Alice being silly.|
|Mom's cousin Kristy came to say hello.|