I've tried to convince the doctors that the weight and vitals can wait. My petition didn't get very far...of course I knew it wouldn't. I know they have schedules to follow and decisions to base off this early morning information. Currently there really isn't a perfect way to please both sides. I do have a list of ideas/inventions that will make any hospital stay easier and more efficient, inviting a better sleep environment. All I need now is plenty of spare time to make these ideas realities. Hmmm...oh and I might need some scientists, engineers, medical experts, etc.
Alice's ANC was actually 200 today. This is great for her. She received platelets and more Neupogen (and will continue to receive Neupogen each day at home); she will be checked in clinic on Monday, possibly to receive blood. She came home on an additional antibiotic called Cefepime; while in the hospital she was on Linezolid as well, another antibiotic.
We are so excited that Alice came home today. As we were driving home she continued to tell me to drive faster because she wants to see her family. What a sweet thing it is to be all together!
We had an amazing dinner together provided by a sweet neighbor/ward member. We had a quick family home evening discussing how we need to be more careful with germs now that Alice is more fragile. The kids have heard this drill one too many times and didn't seem too thrilled about it. The night ended in front of the T.V. watching Peter Pan, with Natalie cranking the volume up and the rest of us suffering through. Everyone was fighting over who gets to cuddle with Mom. Alice had her double pump system running while Evie taunted her with tugging on it. And all the while Tyler slept through the whole thing. He managed to be left alone on the couch. I love my family, even when we are wild and obnoxious.
Welcome Home Alice....it has been a long month!
|Room packed up and ready to go. She insisted on wearing her Minnie Mouse dress home ("the most beautiful dress she has ever seen"), so I had to go back to the car and get it out of the bags I had previously taken to the car. It was all worth it.|
|Why do these masks make children look so cute.|
|She was afraid to get cold outside. It was windy and cold...good idea Alice.|