The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, March 1, 2013

Three Penny Wishes

Tyler brought Blair and Evie along for the ride as he and I switched places at the hospital.  I was so happy to walk out of the unit where Alice is staying to see little Evie and Blair smiling at me; Evie with three random bows in her hair and no shoes, but she had socks.  I love the daddy hairdos.

Blair wanted to throw some pennies in the pond as we were leaving.  I gave each of them three pennies...Blair shared his wishes with me. #1 To have a transporter, #2 To have laser eyes, #3 To have Alice get better.  After he threw his pennies in he said, "Hey, Mom I don't think my wishes will come true because look my pennies didn't sink...the pond is frozen"  I just laughed, and enjoyed the moment.  I didn't even think about the pond being frozen.

Up and About

This is the first time she has sat up in almost two weeks.  She at least has been walking around the past couple days.

As for Alice, she is improving each day.  Her infection is looking much better.  She will stay at least until most if not all of it has healed.  Maybe into next week.  We try not to ask when we are going home, because that question never has a definite answer.

We continue to discuss what is around the bend regarding Alice's care.  We have talked of many things...we feel at some point something will stick and feel right.


1 comment:

  1. Thinking of Alice and your whole family. I truly hpe they figure out what is right to get Alice well again soon xxx