The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, April 13, 2013

Happy Birthday Blair!

Blair turned 6 today.  He was very excited for his birthday but managed to keep cool and was patient for the evening to come when Grandparents came to celebrate and sing happy birthday. 

Blair we love you and are so proud of you!!!  Happy Birthday!!!

Blair requested Clam Chowder for his Birthday Dinner.  Our sweet friend Emily brought some by the day before, we had Chowder two days in a row.

Natalie went to the dollar store several weeks ago to get Blair a birthday present.  She found these great eye glasses.  She had it wrapped and hidden for three weeks prior to his birthday.



Alice and Grandma

Blair was the VIP in his kindergarten class.  We shared with the class all of his favorite things.  He was a little shy.

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