The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, April 6, 2013


Alice received a giant bag of platelets today.  She couldn't wait until clinic on Monday.  In fact she will most likely receive more on Monday.  Her mouth was starting to bleed out...this is a good indicator that she needed them asap.  She said to me over and over, "Mom, I need to go to the hospital."

When she came home from the hospital she said, "I feel better."  She really perked up and wanted to stand again and even play.  Her arm is beginning to throb less and the swelling has improved.  She feels better each day.

Tyler and I immediately felt a huge sense of relief when she received platelets.  We were worried about her.

Alice wanted to read me a story so I recorded her doing just that....this is just audio.  She is obviously feeling better. :)



  1. That is so precious.

    Cindy in Tennessee

  2. She sounds so cute!!! Alice is wise beyond her years when it comes to knowing her body and what it needs. I'm glad she's feeling better.