The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, May 11, 2013


Natalie's Wish
April 24-May 1

Can we stay here and never go home?  A regular question from Natalie. 
The water was just what Natalie needed.  She wanted to swim day and night. She would have tried to reside in Hawaii indefinitely had Alice and Evie been with us.

Tyler made a great video capturing some of our favorite things about our trip to Hawaii.  


  1. That brought tears to my eyes. She looked like she was having the time of her life! What a great experience for your family.
    P.S. loved, the PG triathlon swim cap.

  2. What a blessing to be able to take Natalie to Hawaii. Such a wonderful, peaceful place. Thank you for continuing to share your experiences. You are a great family!

  3. absolutely PRICELESS! What a wonderful trip!! I am so happy for you. GOOD LUCK this week!! WE LOVE YOU GUYS!

  4. I'm so happy that you got to go to Hawaii for a beautiful and fun break! What a wonderful memory for Natalie to have.

  5. What a wonderful trip!!! You can see the joy on everyone's faces!!!