The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, May 9, 2013

Labs for Natalie

Natalie went to Riverton Hospital today for a chest x-ray and a sputum test.  We think her sinus infection is returning.  Her fevers continue and her symptoms are very similar to that of six weeks ago when we started her course of antibiotics.

We have started her again on further antibiotics until we hear differently.  We might learn more depending on the sputum test results.

Hopefully in the next few days we will see her symptoms improve.

As for Alice she is recovering from the biopsy.  She squats down to pick things up from the floor, because bending over hurts her little hips.  She is so cute.

We are looking forward to the upcoming beautiful weather, maybe it will help dry up some runny noses at our house.


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