The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Saturday, October 12, 2013

Laughs All Day, Day -5

Nothing but playing and laughs all day for Alice.  We have had the best day ever!  She kept everyone very entertained around here.

Her counts are still stable.  She had a dressing change today and it conveniently occurred when Aunt Amberly stopped by, so she requested that Amber hold her hand during the dressing change.  Thank you Amber!  Amberly came with a new Minnie Mouse Halloween night cute!

She was pretending to drive a wild car really fast...this was all her idea.  In the first video she crashed but continued to drive that wild car.  After a while the nurses from other rooms were stopping by to see what was so funny.  I think Alice was the loudest patient of the day (opps)....thankfully a happy loud.


Alice and I Skyped (facetime) home and spent at least an hour on Skype.  Natalie carried the iPad with her the whole time.  She has been homesick for her Mom.  Monday Natalie has a scheduled EEG here at the hospital, so I will get to see her Monday. :)

Mom loves you Natalie, Matthew, Blair and Evie.  I miss you!!!


...And Tyler had an awesome day because both BYU and University of Utah won!  I even watched the BYU game on TV so I could talk football with Tyler.  I could see the fans in the U stadium from the window.  That was exciting. --The things we find exciting around here.

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