Luckily today was less eventful than yesterday. We managed to finish all three mouth cares; Mary, our sweet nurse got in there and made it happen, and yet was so gentle and sweet--we even bathed Alice, she was feeling well enough. Her PICC line dressing needed to be changed, she did quite well.
Alice and I watched many of our home videos of her as a baby. She really enjoyed watching them. She would laugh and ask to play them again. She even expressed frustration as the boys would tease in the video. I could see that she was in to them, and fascinated by them. It made me happy to see her smiling face. She was a smiley baby, always animated. Oh the memories!
Her hair has turned into a giant mess. She won't let me brush it or cut out the dreadlocks that have accumulated. Once the hair falls out it tangles with the hair still connected and creates a big snarl. The picture below portrays exactly what I just explained. Underneath and along the sides are large bald spots.
I have been so content to be here with her. I love every minute beside her. She was so cute today when the physical therapist came; she talked more than I had expected. She even walked around the room, which was on my goal list for her today. I wasn't sure if she would be feeling well enough, but she did it and was fine. I am so proud of her.
Good news, her weight has come back down...she was holding a lot of fluid. In the past day she has lost a pound of fluid. Her blood pressure has improved. We are happy.