The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, February 28, 2014

The Croup

Yesterday I was outside raking up leaves. It was an unseasonably warm day and it made sense for us to be outside and enjoy the weather. The kids were jumping on the trampoline,  and while I was raking the leaves Alice spiked a fever. So, I took her up to Primary's. Turns out she has a case of the croup. It took only one cough for the doctors to diagnose her. It resembled a barking seal. Keeping her healthy is such a struggle; it weighs heavily on Lisy and I. Nevertheless, these are the cards we have been dealt, and we will play the best hand we can. There will be more blood draws and tests in the next couple days. We will be sure to keep all of you updated.

1 comment:

  1. We are praying for you guys. Hope Alice get better quickly!!