The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, December 18, 2011

A Cousin's Tribute

My son heard that his cousins were going to lose their hair during chemotherapy and decided to shave his head to be like them.

Tribute Video
Posted by Jared at 8:00 PM

1 comment:

  1. Amy Lindstrom ~ YourLifeUncommon.comDecember 20, 2011 at 2:13 PM

    I cried through this whole video! It totally took me back to sitting in the sacrament meeting in the hospital and watching sweet little bald kids walk in with their IV pole and their parents. Parents sporting a bald head as well, although theirs was by choice. The REALLY brave ones also shaved their eyebrows! :)

    Such a sweet tribute, from a sweet cousin!

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