Unbelievable job done by KSL tonight on their story about Natalie, Blair & Alice.
KSL Website Story
Video of KSL News story
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Normal ANC
The Natalie & Alice Fish Story
We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.
While in the hospital
Reference for Counts
For the average person
1500-8500
Normal Hemoglobin
11.5-13.5
Normal Platelets
150-400
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2011
(39)
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December
(31)
- Happy New Year!--Day 10
- A Visit From Matthew--Day 9
- Natalie's Touch
- Warm Anti-bodies
- Mouth Sores
- Chemo
- Merry Christmas
- Day Plus 3 and Christmas Eve
- Day Plus 2 and David Archuleta
- Day Plus 1 and First Blood Transfusion
- Marrow For Natalie--Transplant
- An Early Morning
- Natalie's Rest Day
- A hard night
- A Cousin's Tribute
- A Better Day
- Effects of chemo are setting in
- Double Dose
- KSL News Story & Video
- KUTV News Story & Video
- The Beginning of the End
- It's Here!!!
- Automatic Updates via Email
- How to Help!
- More News
- Cleaning out my Purse
- Alice's turn for testing
- Broviac Line today, Alice begins tomorrow
- Small Delay
- Yeah, I have a blog now!
- Email From Lisy
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December
(31)
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