We have reached the end of the day and things have calmed down. What a whirlwind it has been. I can't remember if it should be day or night, sometimes this happens in the PICU. Alice's room in the PICU was between two rooms where Natalie was when she had Swine Flu and another time with Legionaries Disease. Being there naturally brought back some hard memories.
The EEG reported normal. The neurology team was pleased with the results, yet perplexed as to what happened. Between the PICU doctors, Bone Marrow doctors, and the Neurologists still remains a mystery as to what the initial cause was that led to Alice's seizures. The medications that are suspicious have been removed from her list. Her sugar levels are partially unexplained...as they have been watching them closely throughout the entire transplant process. Her glucose levels are stable now. She is not diabetic, nor does that mean she will be. It was just a random response to many factors at the time.
When Alice was being brought back to her original room she was aware of where she was. Upon arriving to her room she recognized Natalie's old room. She continued to say, "want Natalie's room" pointing in the direction across the hall. She repeated this six dozen times at least.
Alice's mental status is returning more each hour. This evening she was able to hold her head up by herself. She drank apple juice, and kept some of it down. Her eyes are still wondering but is able to focus enough to recognize and identify things. It's very comforting to see hourly progress.
We are thankful for the nurse Tabitha who handled the situation so well when Alice was coded. Tabitha was so responsive and acted quickly.
Alice received more blood today.
We are blessed to have so many people praying and fasting for her. She has made major improvements and we are certain that prayers are being answered.
When I came home from the hospital this evening, my house was clean, my laundry was done, my children were well cared for and a yummy dinner was delivered by my sweet neighbor. WOW! Thank you, Thank you!
Someone once said that two things can happen during hard times--they can make you or brake you. Because of so many others it would be impossible to allow the later to happen.
Before putting the children to bed I gathered them around me and explained that Alice is getting better. We sat and talked about Alice, about all the funny things she does. Each shared something they love about her. Within moments we were giggling and laughing. Oh, how we miss her at home.
I told them to remember all the blessings we have received in the past few days and during family prayer Matthew said, "Heavenly Father thanks for taking good care of Alice and thanks for everybody who fasts and prays for Alice." I know he really meant it. He told me about a movie he saw on The Friend website today. He said, "it made my tears come". I watched it and loved it. I feel like we are that little boy receiving such a beautiful red coat from all who know and even don't know us through your prayers.
Here is the address to this sweet story Matthew was telling me.
http://mormonchannel.org/the-coat
Natalie also reminded me of a story she watched in Primary one Sunday of two boys who helped a man in need. It's called "Silver Dollars in the Boots". It's easy to find through google or youtube.
Thank you!
Lisy
The EEG testing was a little tricky because she was so restless, it required two people to hold her still, while placing the leads.
This head bandage looks worse than it is. It's just to hold the leads in place during the testing. The test takes an hour or two so they make sure it's secure.
