The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, February 7, 2012

Sleepy Day

Alice woke this morning early. She wanted to play but could not overcome being sick every 15 min. Her white cells continue to increase as her body is working to adapt to her new marrow. She was overcome by exhaustion around noon and slept until 6pm. She had a window where she felt good enough to paint her nurse's nails. Afterward she became tired again and fell asleep. Her nurse said her sleepiness and low grade fever is a good sign that she may be engrafting soon.


Posted by at 12:17 AM

3 comments:

  1. ValerieFebruary 7, 2012 at 5:26 AM

    Wow, that's so cute! A real little princess/artist! Thanks to the nurse for playing the game, that's lovely! :) Still praying for all of you!

    ReplyDelete
  2. AnnaFebruary 7, 2012 at 8:12 AM

    I can't believe how good she is painting fingernails. I'd never let Charlie loose with nail polish. His coordination isn't as good as Alice's. Here's hoping she engrafts soon and gets feeling well again.

    ReplyDelete
  3. jeriFebruary 9, 2012 at 1:25 PM

    Hang in there Alice - I hope you start feeling better soon!

    ReplyDelete

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