The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, February 24, 2012

GOOD NEWS--Engrafted!!


Today is Day plus 38 for Alice, her ANC today was 1400. WOW and HOORAY!! This is a HUGE leap. She has officially engrafted. Her ANC of 600 yesterday must have been accurate.

We have waited so long for this day, and are thankful for the many prayers that have brought us to this point. Alice is more and more herself as time passes.

I felt it necessary to have Natalie and Matthew interact with her as she is healing from the brain trauma. She was very happy to see them. Natalie made her a darling card, showed her some home videos she had made on her iPad. She thought they were hilarious and so did Alice. Matthew is great medicine for anyone, especially Alice. She was asking for him earlier in the day.

It was hard for Alice to say good-bye when Natalie and Matthew had to leave.

Blair stayed home to keep Evie company, he was getting tired. However, I think he had a hidden agenda to rescure the Princess from King Bowser's castle.

Thanks again Everyone,

Lisy



A nice little bath to help with diaper rash, and Kathy the nurse.


It must be exhausting making more than double your white cells over night.





Posted by at 2:14 PM

14 comments:

  1. jfishmagFebruary 25, 2012 at 12:38 AM

    YAY ALICE! I am so glad you engrafted!!!

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  2. Caroline ShoellFebruary 25, 2012 at 12:47 AM

    Tears of joy rolled down my cheek when I Read the wonderful news for sweet Alice! Poor little girl has endured so much! Hope you'll all get some naps! Love Caroline

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  3. Krista LynFebruary 25, 2012 at 1:30 AM

    I found your blog through the story of your family on mal and have been reading ever since! I've been praying for Alice to engraft. This makes me so happy!!!

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  4. TammyFebruary 25, 2012 at 6:27 AM

    I have just caught up with the last few post this morning and have been in tears the whole time. First with sadness and fear for her PICU adventure and now joy with the news that she has engrafted! I am so glad to hear that! What a whirlwind for you! Our prayers continue to go up for Alice and your sweet family.

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  5. amandaFebruary 25, 2012 at 8:53 AM

    even though you don't know me i follow your blog daily. I pray for you and your family often. I have been on pins and needles the last few days! I am soooooo happy that alive has engrafted! As always your strength amazes me. you family will be in my prayers.

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  6. ConnieFebruary 25, 2012 at 9:35 AM

    Congratulations Fish family!:) I was so happy to hear the news! It was the best birthday present ever! Lisy you are an amazing Mom! Give the children hugs from me! Tyler might not remember me from South Carolina! But his family made a large impact on me and mybrought family! My children grew up knowing the Fish family name! Lots of prayers have been sent up in Fish name! Love Connie Abbott

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  7. StephanieFebruary 25, 2012 at 9:37 AM

    Congrats Alice!!!
    I am so glad your doing better, and your engrafted!!!!!!
    I can't wait to read about you going home.
    Hope you and your family have a great day!

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  8. AnnaFebruary 25, 2012 at 12:13 PM

    Huge congratulations! We are so relieved and happy that Alice's big day is finally here. Now we'll change our hopes and prayers that she can come home really soon!

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  9. ShayFebruary 25, 2012 at 2:50 PM

    Yay! for Alice!!! What incredible news after such a scare!! Hopefully now she'll be home before you know it!

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  10. UnknownFebruary 25, 2012 at 3:07 PM

    Go Alice go!! This is great news!!

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  11. CindyFebruary 25, 2012 at 9:31 PM

    So glad to hear the good news! Congratulations!

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  12. JanFebruary 25, 2012 at 11:21 PM

    What a joyful bit of news! We will continue to pray and have faith for quick healing for your beautiful girls and comfort for all of you!

    Much Love, Jan

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  13. BeckyFebruary 28, 2012 at 10:27 PM

    YAY!!! Wonderful News!

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