Thank you to all who have orgainzed the Zumba Fest and Feast Benefit on June 16. We are so grateful for the love you have shown to our family.
Zumba Fest & Feast Benefit
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Normal ANC
The Natalie & Alice Fish Story
We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.
While in the hospital
Reference for Counts
For the average person
1500-8500
Normal Hemoglobin
11.5-13.5
Normal Platelets
150-400
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2012
(218)
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May
(20)
- A Better Day
- Answers
- Thank you everyone, we are so grateful
- A Midnight Walk
- -Alice Joins Us at the Hospital--Happy Memorial Day
- Natalie's a Trooper
- Come Fly the Friendly Skies.
- New Developments--Minimal
- Still Wondering What Natalie Might Have
- Natalie Has a Fever-Back to the Hospital
- Clinic, Day 152 for Natalie, Day 125 for Alice
- Ice Cream and My Little Brother
- Day 145-Natalie, Day 118-Alice
- Alice's Chimerism Dropping
- Clinic...Day 138 Natalie, Day 111 Alice
- Update
- Doctor Tribute and Nurse Practitioners
- Nurse/Staff Tribute
- Red Cross
- Natalie is Home
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May
(20)
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