The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, May 6, 2012

Update

It has been a busy week.  We haven't been able to give an update partly because our time has been limited due to the added infusions of Natalie's recent hospital stay.  The new medications have kept us up a lot at night, as they are given around the clock.  Today she finished the course of IV antibiotics, we hope her body is on the mend entirely.  She is still weak...we will watch her closely.

Alice is doing well and still keeps us laughing.  She doesn't allow anyone to be idle around here.  Always on the go and rarely naps.

Tomorrow is clinic again.  Hoping for good news on counts.

We just posted pictures of our nurses and doctors...we are glad to have pictures of them for memories, for years to come.

Lisy

Posted by at 2:40 PM

2 comments:

  1. UnknownMay 6, 2012 at 5:10 PM

    Praying for good news on counts for Natalie!

    xo,
    Allison
    http://barretts1234.blogspot.com/

    ReplyDelete
  2. Jill HeapsMay 8, 2012 at 8:12 AM

    I love your tribute! It's so fun to see so many familiar faces :) You guys are so wonderful I am positive EVERYONE loves you! I think about and pray for you always...Healthy days are coming!!!!

    ReplyDelete

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