Alice's Princess Dress Wall and Toys
A Nurse Posted Little Fish On Her Door
And Big Fish On Natalie's Door
Tyler Determined To Solve It
Hanging Out In Natalie's Room
Natalie seemed bright and happy when we arrived back to the hospital today. She was so anxious to teach me a new game called Sleeping Queens--Aunt Karina taught her how to play. It is a fun game, she loves it.
Her ANC is 1200 today. She is doing super well. When talking to her Grandmother, she said, "I feel like something inside of me wants to go home."
Alice is still happy and gentle--becoming more uncomfortable. Today she had a low grade fever, however, because she is on steroids it is hard to say exactly what temperature her fever was. Steroids can mask a fever.
She is also having some difficulties breathing, which is troubling. She had an x-ray today to make sure her lungs were fine. The x-ray looked fine. I have seen this very thing with her before and I have my suspicions as to what is happening. Although it doesn't make much sense to the doctors (my idea) I still think it needs to be considered. I have learned over the years with our girls that nothing makes sense in a text book fashion. They are just different, and it's difficult to diagnose anything. Tomorrow should bring new information.
I took some pictures of the girls rooms, maybe Natalie will recognize it later. After all it's been a big part of their lives.
I have been trying to explain to Natalie that even though she is getting better and will be a healthier girl now, she may have 1 or 2 hospital stays during the first 100 days to a year post-transplant, if a fever occurs. Most kids after transplant have at least one hospital stay--ideally we don't want any, but I thought I would at least explain things to her.