The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Wednesday, January 18, 2012

More Fun for Natalie and Day plus 1 for Alice

Today went quickly. Neither of the girls needed blood or platelets or vomited, so it was a matter of keeping them comfortable while playing games with them. Natalie's ANC was 1100, and Alice received her dose of Methotrexate for which should reduce her chances of Graft vs. Host disease. Natalie is asking when she can come home now more often. She needs to eat more before that will happen; she is progressing a little more each day. For the most part, it was a good day for both girls.

The video of Natalie is from yesterday as she shot silly string at Matthew and Blair. You can tell she is too excited, misses them both and instead plasters the sink, you can also tell from her laugh that she doesn't care.


Natalie always has fun with her brothers, they do many silly things together. She usually provides all the clever ideas, and they love it.

Natalie got Grandpa Fish real good!!

1 comment:

  1. so glad to see and hear that everything went well...... and continues to do so. our little family wrote some notes for the girls...... as well as the activity day girls from our ward. A family from our ward will be up at PCMC tomorrow (Friday) for an appointment, so I sent the cards with them. I hope you get them.
    we love you guys. <3