Yesterday (June 29th) I took Alice back to the hospital. Her breathing was labored when she woke in the morning and I could see her ribs each time she inhaled. I knew her oxygen saturation levels were lower than desired and that she would require oxygen. Tyler and I weren't thrilled about going back to Salt Lake, so we took her to our local pediatrician in order to check her oxygen levels. Being up and active she was at 87%. The bone marrow team wanted her back for a night or two to monitor her lungs. We came home from the pediatricians and packed our bags (or just grabbed our bags from the day before when we brought her home), it was great--we were already packed.
Last night they informed us that she has Rhinovirus. The common cold...however, for Alice it's the uncommon cold. This is the same virus she had before transplant. We are relieved to know that it's something that can improve with time rather than something unknown and unpredictable.
Good news, her headaches have subsided.
The plan is for her to return home tomorrow (Sunday). She will require oxygen while she sleeps until this virus passes. Luckily sleeping with a nasal cannula is something we can manage at home.
She hasn't been as cooperative during the past few hospital stays as she was during transplant. Maybe she is ready to be well. We are thankful the times she was more willing and cooperative happened during transplant...what a blessing that was for Tyler and I--as well as Alice.
Thank you for your prayers and thoughts....it makes a big difference!