Natalie's counts: ANC is 700, Hemoglobin 9.9, Platelets 79, Chimerisms (whole body-pending, T-cells is 91%, B-cells is 100%)
Natalie's IgA test showed no antibodies for celiac disease. Very interesting news...the blood testing indicates that she does not have celiac disease, however, they want her to stay on the gluten free diet, at least until her body recovers more. Then they want us to slowly introduce gluten foods to see how she tolerates it. I was surprised of the news. I addressed the concern of the testing being inaccurate because she hadn't eaten gluten for three days before the blood test, however, they reassured me that the antibodies stay in the system for a while...much longer than three days.
Her tummy pain has improved so we will continue with a gluten free diet until otherwise indicated.
Alice's counts: ANC 400, Hemoglobin 9.1, Platelets 184, Chimerisms (whole body 66%, T-cells 97%, B-cells unavailable) Her B-cells will be non-existent for a while because she required Rituximab (chemo drug) weeks after the initial preparatory regimen for transplant. Alice will need IVIG throughout the year regularly.
Both Natalie and Alice had slightly elevated liver enzymes...the doctors will keep an eye on it and check again next week in hopes that it will come down into the normal range.
The girls still require the assistance of the pink bucket each day. We have them strategically placed in the cars and throughout the house. The pink buckets have actually become a source of comfort for both Natalie and Alice...sometimes the nausea just goes away once they hold the bucket in front of them. Alice has nicknamed it "my pink buck".
|Evie helping Mom clean the gluten free garden peas. ;) they made an excellent side dish to the fried chicken Natalie requested for dinner.|