The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Sunday, June 24, 2012

Natalie Back to the Hospital & the Fish 5K & Rodeo Aftermath

We became concerned last night with Natalie when she said she was cold and felt "icky." She quickly found her place on the couch and rolled up underneath her blanket let out a groan. We thought perhaps it could have been something she ate that was causing the discomfort.  Usually if it is in fact something she ate, fevers do not accompany the pain. This time like many others Lisy and I dreaded the moment we would check her temperature and be forced by the number 100 to relinquish our hopes of avoiding another trip back to the hospital. Lisy made the call to Primary's and the inevitable answer to "bring her in as soon as you can" confirmed our family, again would not be spending the night together. Upon arrival Lisy said Natalie's temp had reached 104F. The doctors administered fever reducer so that she could get some rest, took blood samples and asked for patience as they work to determine the cause of the ailment. That is all we know so far. We should have more news on her throughout the day. This morning Lisy did say the fever had broke, but was still waiting on the blood results.

Oh how Lisy and I wish that we could adequately express how grateful we are to you all of you who continue to give encouragement to our little girls through this time in their lives. Thank you to everyone who had a part in the Fish 5K on Saturday morning. I was so happy to be back in Alpine and reconnect with old friends and converse with those who we would have never met if it hadn't been for our girls and communicating their story through this blog. I was so impressed how wonderfully the event was organized. We are so grateful to all of you . My favorite part was the route itself, because it took us through all the neighborhoods I had many adventures in while growing up in Alpine. It was really therapeutic for big daydream of yesteryear. Thank you, Thank you


Update on Matthew. The morning after his triumphant ride into the Strawberry Day's sunset; he said, "Dad my arm feels like it has a heart in it." I knew then we should probably get an x-ray of it. Sure enough the doctor confirmed that he fractured his humerus bone up near his shoulder. He came home wearing his sling with a big grin on his face. He's just as proud of his sling as he is his trophy at the moment. He's also happy that he got to go see the doctor for his own ailment. His point of view has always been: "Why does Natalie always get to see the doctors?" Well, he got his chance and he's getting as much mileage out of it as he can. We'll see how proud he is of that sling in a couple days.

Just wanted to show how happy Blair was to finally be able to ride a sheep.


  1. I guess Primary's just can't get enough of you guys!! I hope this visit is quick WITHOUT an extra little Alice visit to go with it :) Way to go Matthew!! What a great story you will have to tell!

  2. That is a great story! What an awesome trophy, it is huge! I hope he is feeling better