The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, February 15, 2013

Platelets and Biopsy

Alice received platelets early this morning to prepare her for surgery.  She was NPO (fasting), starting at midnight until the biopsy at 1:30 p.m.  She did well enough.

Tyler said Alice's bone marrow biopsy went very well, it was quick and when she woke she was happy to eat.  I was so glad that they were able to get what they needed from her hip.

In the past some doctors were not able to retrieve anything from her hips so they proceeded to her knee.  They finally retrieved what they needed, but her knee was sore and in pain for months.

We anxiously wait for the results on Tuesday.

Matthew said today that he had a dream that Alice was home and sleeping in her bed.  He jumped out of his bed in the night to see her and she wasn't there.  We all miss her around here.

Because it's flu and respiratory season children under 14 are not allowed on patient floors, so the kids have not seen Alice at all except through Face Time/Skype...thank goodness for that.

Maybe Alice can come home next week.

Lisy
Posted by at 9:30 PM

2 comments:

  1. Farida RoneFebruary 16, 2013 at 12:40 PM

    Sending prayers and hugs to your way. Alice will be at home very soon. God is good and he loves her very much.

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  2. StephanieFebruary 16, 2013 at 5:29 PM

    Matthew's dream is sweet and sad all at the same time. I was thinking about you the other day as we had the sister missionaries in our ward come speak to all our YW for mutual. You were always so cute and thoughtful to leave little notes around our place. I can't do that for you now, but I hope this comment at least lets me say that you and your kids are wonderful and so loved!

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