She only stayed until today...two nights total. Last night she was so miserable (headaches and body pain)...didn't fall asleep until 3:45 a.m. I rubbed her back and legs and scratched her head for hours.
We began to wonder if maybe the infusion of IVIG she received in clinic on Monday was a bad batch for Alice. IVIG can cause headaches for several days following an infusion, not super common but happens. She has been very uncomfortable. They gave her some pain killers and it helped.
The fever she had which brought her in at 2:00 a.m. could have been from the Nulasta. Her white count jumped up quickly therefore causing a combustion of cells, which can create fevers. Nulasta can cause a lot of aches and pains in the bones. Thus the leg pain.
Now----we are all home again! And it's GREAT!
There is talk that Alice might be able to have her line removed in the next few weeks. Natalie will need to drink better throughout the day before they remove her line. That ought to be plenty of motivation for her to drink more.
Lisy
We keep the pink bucket close at all times.
And when that pink bucket walks away the garbage can will have to do.
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