The past couple days have blended together for me. I find myself so focused on Natalie's gluten free diet that I get lost in time. I have made many special trips to the store in search for different gluten free foods. I decided to try and follow her diet myself so I could see how it feels. I'm having a hard time not eating breads, crackers, and such. I'm realizing how many foods have gluten in them. However, there are many foods we like that are gluten free...such as rice, potatoes, meats, veggies and fruits. I believe it will take Natalie some time before she doesn't feel the void of wheat and other grains in here diet. We are wondering if she is struggling with dairy as well.
Natalie's getting stronger each day, but still feels fatigue. Today she took a bowl with her outside to the garden to pick peas and strawberries...Natalie, Alice, and Evie ate plenty of peas. We feel lucky to have a garden, which was made possible by Kevin. What a lovely thing it has been for the kids. Natalie checks each day to see if there are more ripened strawberries. Sometimes when the boys are playing outside they will stop for a snack out of the garden....maybe this is why Natalie waits for the strawberries...she needs to beat Blair to them.
We have not heard anything from the doctor regarding Natalie's confirmatory celiac test. By Tuesday we anticipate more news.
Lisy
p.s. my phone is having trouble so I have not been able to retrieve any messages or texts for a few days...if any of you have sent messages, I apologize for not responding.
Natalie's bin of gluten free foods. I think it is so cute when I hear sounds of wrappers coming from the pantry and I see Natalie's little body leaning over her bin finding snacks.
A giant long Father's Day poster from the kids.
There is a store in Taylosville called against the grain. It is an entire store for people with food allergies mainly gluten. They even make special bakery items such as pie, cakes, cupcakes or things that you may need near the holidays. They also have a lot of gluten free frozen foods like chicken nuggest, pizza and fish sticks. It was started by grandparents after their granddaughter was diagnosed with celiac. For me, when we were doing the gluten free dairy free diet for my son with Autism it was a great resource. Also, dominos pizza now has gluten free pizza. It is hard at first but gets easier with time. Good luck!
ReplyDeleteI would NOT trust dominos pizza!!!!!! They are not trained well with cross contamination. That is one of the hardest parts of being gluten free- cross contamination. The Pizza Pie Cafe (I think that's the name) in highland by Kohlers offers gluten free pizza and pasta.
DeleteI have been following your blog for awhile now. I have celiac disease myself. I am concerned that the doctors had you put Natalie on a gluten free diet before the blood test was done. You have to be eating gluten for an accurate test result. There is a lot of blogs online with lots of great recipes and info. I have one myself, but haven't put anything new for awhile. www.jewelsglutenfreekitchen.blogspot.com Good Luck and if you have any questions or need help. Let me know: julie_varga@hotmail.com
ReplyDeleteAnother great resource is the Gluten Intolerance Group of Utah County. They meet once a month and have a facebook page as well. https://www.facebook.com/pages/Gluten-Intolerance-Group-of-Utah-County/186305748063030
DeleteThere is a local girl that makes gluten free baked goods. You can buy them pre-made or as a mix. It's amazing stuff and I don't even have to eat gluten free!
ReplyDeleteHer name is Angelina Sutcliffe
www.goodfoodglutenfree.com
801-413-4978
This way Natalie can help bake her own gluten free things!
Good luck to all of you! The girls are looking fantastic! I love following your blog to see how they progress all the time.