The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Tuesday, June 19, 2012

Thank You

Thank you for your comments and tips regarding gluten.  It has been extremely helpful.  Tyler and I appreciate the comments and can benefit from your experience and advice.  There are many great resources out there, thank you for sharing this information.

Lisy
Posted by at 12:41 PM

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