The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, March 16, 2015

Disney Magic



We finally have Alice's wish trip movie put together. What an incredible experience! In addition to the Disney footage we have included our day at Harry Potter Land. We will never forget how wonderful this trip was for our family and especially Alice.

p.s. Nobody got lost!!!!
Posted by at 6:55 PM

4 comments:

  1. EmilyMarch 23, 2015 at 9:18 AM

    Oh, I loved this! It made me cry! Especially as I watched Alice hug Alice in Wonderland and I thought about all that little Alice has overcome. Love you all. So happy it was a great trip.

    ReplyDelete
  2. Penny WadhamMarch 29, 2015 at 8:45 AM

    What a neat experience for your beautiful family. We love you all so much!

    ReplyDelete
  3. UnknownApril 16, 2015 at 12:22 AM

    Hi :) My name is Kelli from Sandy and you bought that light from me (I hope the light worked out). I am so happy that Alice got her trip! What a wonderful reward for all she has been through. And that video was incredible. Best wishes to your family :))

    ReplyDelete
  4. essay bestJune 16, 2017 at 3:19 PM

    What a memorable trip it must be wit your angels, Alice is such a sweetheart. God bless you and your entire family. Much love.

    ReplyDelete

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