Fishes for Marrow Wishes: quick postFishes for Marrow Wishes

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.

Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Monday, March 9, 2015

quick post

Hello,

This is just a quick post to let you know we are still here. Everyone is in good health and we did have a fabulous time in DisneyWorld. Tyler made an awesome movie and it is almost ready to post.

We have had a handful of clinic visits in the meantime. We moved two days before leaving for DisneyWorld. Things have been busy...all in a good way. Tyler started a new job in the Thanksgiving Point Business area, great commute- 8 minutes!!

As we are feeling more settled and finding more of a rhythm, I will ensure that my next post (which will be soon) is full of detail with pictures and videos.

Thanks again to all who have made our journey much better than it ever could have been.

Much Love,

Lisy