Just in the past two days we began to see enough improvement with Natalie's lungs to feel better about her recovery. Her fevers have gradually disappeared. She even seems to be doing better with her saturation levels at night. I noticed two nights ago that she was at least two feet away from her oxygen source and her level remained above 90 for a good 30 minutes. This was exciting for all of us. We are more aware of her asthma needs and perhaps this is partly contributing to her improvements.
I think today was our new record time for Clinic. We left the house at 9:00 a.m. and returned by 1:00 p.m. There were no infusions or shots today. Natalie was able to do her labs with a finger poke....YEAH! Next week won't be so easy, as she will require more labs than a finger poke can provide and Alice may require an IVIG infusion and possibly some Nulasta.
We are moving forward one day at a time. Surely there are many days we feel like we are going backwards, but in reality we are moving ahead always...it just helps to see it in a more tangible way. Today was a good day to feel more substance to the girls' recovery.
We are still wondering who is Danika the Cat.
|Headed out the door for clinic.|
|Alice dressed herself.|
|Last night after baths I decided to see how long the girls' hair has grown. Neither have had it trimmed and both were exactly three inches. So in nearly 9 months time their hair has grown three inches. Is this slow or fast? I don't know.|
|She was very confused as to why I wanted to measure her hair with a ruler stick.|
|Minnie Mouse--Perfect for Alice.|
|That poor little elephant--he didn't stand a chance with her.|
|Amazing talent. I can't believe how cute they are.|
|They almost look too good to be true. Someone knows Natalie has a fascination with Elephants.|
|She eats the nose first, it's a gummy worm and the ears are a mint cookie. Thank you for the cake pops!|
|Evie loves the cereal boxes.|
|Once she snacks in them, we usually dedicate the rest of the box to her. This is where she goes when Mom is scrambling to fix a meal.|