The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Friday, September 28, 2012

Surgery For Natalie/Ear Tube Removal

Today Natalie and I left for the hospital early.  She had her right ear tube removed.  It was a very quick and simple procedure.  She was sedated with an anesthesia gas...orange flavor by her request.  The procedure was only 15 minutes.

Dr. Smith the ENT said there's a 50% chance that her ear drum will heal.  Because of the duration of time that it has been in her ear and her health situation, the chances of healing are less than normal.  We hope her ear drum heals...if not, she will require patch work to be done.

Lisy


Just waking up....and Happy


Going home in record time.


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