The Natalie & Alice Fish Story

We are the Fishes. In 2011 two of our five children; Natalie and Alice were diagnosed with a rare gene disfunction called Leaky SCID (Severe Combined Immune Deficiency). Their condition is so rare that only two cases are reported in the U.S. each year. Both girls have endured much, and have spent most of their young lives in and out of hospitals due to common illnesess a healthy immune system would overcome. The required treatment for our girls is a bone marrow transplant.
Although the new marrow could mean a normal life for them, it will be a long and arduous road. This blog is to share our experience as parents and the courage of our children.

Thursday, September 6, 2012

Great News for Alice

The doctor (Hilary) called today and said that Alice's labs from clinic came back and indicated her anti neutrophil antibodies can not be detected.  This is awesome.  Hopefully now her body will be able to keep the neutrophils that it produces, rather than the antibodies attacking them.


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